Digital Self-Harm

Self-harm is the infliction of pain or injury onto oneself. Historically these behaviors have been relegated to the fringes of communities. Technology now enables new ways to foster and encourage these dangerous activities. The HCI field possesses few examples of scholarship focused on self- harm. This research focuses on characterizing the presentations of non-suicidal self-harm behaviors within social computing platforms. Building on these characterizations, we can begin to look at diagnostic screeners and tools to better understand how we can start connecting online activities related to one's mental illness to the physical presentation, detection, and treatment related to their disease.

Building on our survey of the use of Internet technologies and social media by adolescents, we were concerned to receive reports of students publishing reports of destructive behavior, such as eating disorders and cutting, as well as social media content to motivate these behaviors. We completed two studies to understand current practices online for publishing content that promotes self-harm.
In our first study, we describe the shifting nature of lexical patterns associated with self-harm behaviors online. These lexical transformations highlight online practices to evade censorship by the community-at-large or the social media platform itself. Understanding these practices was pivotal in setting an accurate foundation to build upon so we can better understand the real behavior that is taking place online related to these behaviors - the terminology is a gatekeeper to finding the authentic posts online. We used the outcomes of our first study to refine our data collection across several platforms. We then analyzed this data for the types of information being shared within social media platforms. These types included “thinspiration”, the eating disorder journey, diets & food, and connections to other mental health issues like anxiety, depression, and bipolar disorder.

We developed an extensive corpus of self-harm related terminology so that researchers in this space have more accurate data to use when trying to uncover these behaviors. This data can be found here.

In the news:
Why digital self-harm is hidden in plain sight
We can't afford to be in the dark about digital self-harm
How pro-eating disorder posts evade filters on social media
Pro-eating disorder communities modify hashtag terms to perpetuate the movement
Instagram's banning of pro-anorexia content may have made the problem worse
What happened when Instagram banned pro-anorexia words

Related Publications: 

Charting the Unknown: Challenges in the Clinical Assessment of Patients’ Technology Use Related to Eating Disorders

Pater, J.A., Nova, F.F., Coupe, A., Reining, L.E., Kerrigan, C., Toscos, T., Mynatt, E.D. (2021). Charting the Unknown: Challenges in the Clinical Assessment of Patients’ Technology Use Related to Eating Disorders. In CHI Conference on Human Factors in Computing Systems (CHI ’21), May 8–13, 2021, Yokohama, Japan. ACM, New York, NY, USA, 14 pages. DOI: 10.1145/3411764.3445289. [pdf]

Exploring Indicators of Digital Self-Harm with Eating Disorder Patients: A Case Study

Pater, J.A, Farrington, B., Brown, A., Reining, L.E., Toscos, T., and Mynatt, E.D. 2019. Exploring Indicators of Digital Self-Harm with Eating Disorder Patients: A Case Study. Proc. ACM Hum.-Comput. Interact. 3, CSCW, Article 84 (November 2019), 26 pages. [pdf]

”Notjustgirls”: Explor-ing male-related eating disordered content across social media platforms

Pater, J.A., Reining, L.E., Miller, A.D., Toscos, T., and Mynatt, E.D. 2019. “Notjustgirls”: Exploring Male-related Eating Disordered Content across Social Media Platforms. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI ’19). Association for Computing Machinery, New York, NY, USA, Paper 651, 1–13. [pdf]

Defining Digital Self-Harm

Pater, J., & Mynatt, E. (2017, February). Defining Digital Self-Harm. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (pp. 1501-1513). ACM. [pdf]

“Hunger Hurts but Starving Works:” Characterizing the Presentation of Eating Disorders Online

Pater, Jessica A., Oliver L. Haimson, Nazanin Andalibi, and Elizabeth D. Mynatt. "Hunger Hurts but Starving Works”: Characterizing the presentation of eating disorders online. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing, pp. 1185-1200. ACM, 2016. [pdf].

# thyghgapp: Instagram Content Moderation and Lexical Variation in Pro-Eating Disorder Communities

Chancellor, S., Pater, J. A., Clear, T. A., Gilbert, E., & De Choudhury, M. (2016, February). # thyghgapp: Instagram Content Moderation and Lexical Variation in Pro-Eating Disorder Communities . In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing (pp. 1199-1211). ACM. [pdf]

Does my research trigger you? Designing studies for patients with eating disorders

Pater, J.A. and Mynatt, E.D. (2018). Does my research trigger you? Designing studies for patients with eating disorders. Workshop Paper: Conducting Research with Stigmatized Populations. ACM Conference on Computer-Supported Cooperative Work Social Computing. Jersey City, NJ [link]

Characterizing the Presentation of Eating Disorders Across Social Media Platforms – Lexical Variations and Behavioral Archetypes

Pater, J, and Mynatt, E.D. 2018. Characterizing the Presentation of Eating Disorders Across Social Media Platforms – Lexical Variations and Behavioral Archetypes. Proceedings of the 25th AED International Conference on Eating Disorders (ICED). Chicago, IL.

Multimodal Classification of Moderated Online Pro-Eating Disorder Content.

Chancellor, S., Kalantidis, Y., Pater, J. A., De Choudhury, M., & Shamma, D. A. (2017). Multimodal Classification of Moderated Online Pro-Eating Disorder Content. In Proceedings of the 2017 Human Computer Interaction Conference (CHI 2017). ACM. [pdf]

Understanding Cultural and Gender Differences of Eating Disordered Behaviors on Social Media

Pater, J.A., Mynatt, E.D., Understanding Cultural and Gender Differences of Eating Disordered Behaviors on Social Media . Proceedings of the 26th AED International Conference on Eating Disorders (ICED). New York, NY.

Does the Punishment fit the “crime”? Online harassment policies and the case of self-harm

Pater, J, and Fiesler, C. Does the Punishment fit the “crime”? Online harassment policies and the case of self-harm. Workshop paper: Understanding Bad Actors, ACM CHI Conference 2018. Montreal, Canada.